{"id":34710,"date":"2024-11-14T01:17:00","date_gmt":"2024-11-14T07:17:00","guid":{"rendered":"https:\/\/ustower.net\/?p=34710"},"modified":"2024-11-14T03:22:39","modified_gmt":"2024-11-14T09:22:39","slug":"what-23andme-business-troubles-could-mean-for-millions-of-users-genetic-data","status":"publish","type":"post","link":"https:\/\/ustower.net\/?p=34710","title":{"rendered":"What 23andMe business troubles could mean for millions of users&#8217; genetic data"},"content":{"rendered":"\n<p class=\"has-medium-font-size\">The&nbsp;<a href=\"https:\/\/www.goodmorningamerica.com\/News\/video\/23andme-lay-off-40-staff-115806933\" target=\"_blank\" rel=\"noreferrer noopener\">financial struggles<\/a>&nbsp;of genetic testing and ancestry company&nbsp;<a href=\"https:\/\/www.goodmorningamerica.com\/news\/story\/connecticut-attorney-general-presses-23andme-data-breach-answers-104510476\" target=\"_blank\" rel=\"noreferrer noopener\">23andMe<\/a>&nbsp;are raising questions about the security of customers&#8217;&nbsp;<a href=\"https:\/\/www.goodmorningamerica.com\/news\/story\/dna-test-upends-identity-find-family-secret-facebook-56904359\" target=\"_blank\" rel=\"noreferrer noopener\">DNA<\/a>&nbsp;and other data.<\/p>\n\n\n\n<p class=\"has-medium-font-size\">The company&nbsp;<a href=\"https:\/\/investors.23andme.com\/news-releases\/news-release-details\/23andme-announces-business-restructuring-streamline-operations\" target=\"_blank\" rel=\"noreferrer noopener\">announced<\/a>&nbsp;Monday that it would lay off around 40% of its workforce &#8212; about 200 employees &#8212; and close its drug development arm in an attempt to cut costs.<\/p>\n\n\n\n<p class=\"has-medium-font-size\">On Tuesday, 23andMe&nbsp;<a href=\"https:\/\/investors.23andme.com\/news-releases\/news-release-details\/23andme-announces-business-restructuring-streamline-operations\" target=\"_blank\" rel=\"noreferrer noopener\">released<\/a>&nbsp;its latest earnings report, showing revenue dipped 12% in the last quarter and share prices fell.<\/p>\n\n\n\n<p class=\"has-medium-font-size\">The company has faced additional struggles over the past several months, including the&nbsp;<a href=\"https:\/\/investors.23andme.com\/news-releases\/news-release-details\/independent-directors-23andme-resign-board?_gl=1*1awxaaq*_ga*MTkwMTUwNjE4Ni4xNzMxNTEyODA1*_ga_G330GF3ZFF*MTczMTUyNDA0Mi4yLjEuMTczMTUyNjEwNy4wLjAuMA..\" target=\"_blank\" rel=\"noreferrer noopener\">resignations<\/a>&nbsp;in September of the seven independent directors of the board.<\/p>\n\n\n\n<p class=\"has-medium-font-size\">Since its founding in 2006, 23andMe has sold more than 12 million of its DNA kits, which use a saliva sample to extract DNA that is then analyzed,&nbsp;<a href=\"https:\/\/www.23andme.com\/howitworks\/\" target=\"_blank\" rel=\"noreferrer noopener\">according to<\/a>&nbsp;the company&#8217;s website.<\/p>\n\n\n\n<p class=\"has-medium-font-size\">Here are four questions answered about 23andMe and users&#8217; data.<\/p>\n\n\n\n<p class=\"has-medium-font-size\">A 23andMe spokesperson told ABC News the company had no further comment when asked Wednesday how the company&#8217;s business turmoil may impact customers&#8217; personal data.<a href=\"https:\/\/abcnews.go.com\/GMA\/Family\/women-learned-sisters-dna-testing-speak-pretty-mind\/story?id=61320863\"><\/a><\/p>\n\n\n\n<p class=\"has-medium-font-size\">The company\u00a0<a href=\"https:\/\/blog.23andme.com\/articles\/privacy-protections\" target=\"_blank\" rel=\"noreferrer noopener\">states<\/a>\u00a0on its\u00a0<a href=\"https:\/\/www.23andme.com\/legal\/privacy\/\" target=\"_blank\" rel=\"noreferrer noopener\">website<\/a>\u00a0that it does not sell or share customer&#8217;s personal information to third parties without the customer&#8217;s consent, that it does not voluntarily share data with law enforcement, and that it provides an opt-in option for customers who want to participate in research.<\/p>\n\n\n\n<p class=\"has-medium-font-size\">No. 23andMe is considered a direct-to-consumer genetic testing company, and transactions with the company are considered commercial, not medical.<a href=\"https:\/\/www.goodmorningamerica.com\/news\/story\/connecticut-attorney-general-presses-23andme-data-breach-answers-104510476\"><\/a><\/p>\n\n\n\n<p class=\"has-medium-font-size\">Because 23andMe is not a medical company, customers&#8217; personal information is not protected under the\u00a0<a href=\"https:\/\/www.hhs.gov\/hipaa\/for-professionals\/privacy\/guidance\/access\/index.html\" target=\"_blank\" rel=\"noreferrer noopener\">HIPAA Privacy Rule<\/a>, which affords privacy protections to health records.<\/p>\n\n\n\n<p class=\"has-medium-font-size\">In 2023, the company&nbsp;<a href=\"https:\/\/abcnews.go.com\/Technology\/video\/massive-data-breach-popular-genetics-testing-company-105382188\" target=\"_blank\" rel=\"noreferrer noopener\">experienced<\/a>&nbsp;a massive security breach that exposed the data of nearly 7 million users.<\/p>\n\n\n\n<p class=\"has-medium-font-size\">23andMe said at the time that customer profile information shared through the company&#8217;s DNA Relatives feature had been accessed without authorization.<a href=\"https:\/\/abcnews.go.com\/Health\/wireStory\/23andme-cuts-40-workforce-discontinues-therapeutics-division-115777542\"><\/a><\/p>\n\n\n\n<p class=\"has-medium-font-size\">The company agreed in October to pay a $30 million cash settlement in a class-action lawsuit stemming from the data breach,&nbsp;<a href=\"https:\/\/apnews.com\/article\/23andme-board-directors-resign-settlement-b3fda30fc8a95538f9391c5439c1cd52\" target=\"_blank\" rel=\"noreferrer noopener\">according to<\/a>&nbsp;The Associated Press.<\/p>\n\n\n\n<p class=\"has-medium-font-size\">Following the breach, the company also\u00a0<a href=\"https:\/\/blog.23andme.com\/articles\/addressing-data-security-concerns\" target=\"_blank\" rel=\"noreferrer noopener\">said<\/a>\u00a0it required every customer to reset their password and began requiring all customers to use two-step verification for login.<\/p>\n\n\n\n<p class=\"has-medium-font-size\">As a general rule, consumers who have shared their DNA with any direct-to-consumer genetic testing company should pay attention to the company over the years, as companies have the right to change their privacy policies and business practices.<\/p>\n\n\n\n<p class=\"has-medium-font-size\">Companies, 23andMe included, also have a responsibility to notify consumers of changes and get &#8220;consumers&#8217; affirmative express consent for any new uses of their data,&#8221;&nbsp;<a href=\"https:\/\/www.ftc.gov\/business-guidance\/blog\/2023\/06\/privacy-security-genetic-information-putting-dna-companies-test\" target=\"_blank\" rel=\"noreferrer noopener\">according to<\/a>&nbsp;the Federal Trade Commission, the government agency that conducts&nbsp;<a href=\"https:\/\/www.ftc.gov\/business-guidance\/blog\/2024\/01\/dna-privacy-privacy-dna\" target=\"_blank\" rel=\"noreferrer noopener\">oversight<\/a>&nbsp;of direct-to-consumer genetic testing companies.<\/p>\n\n\n\n<p class=\"has-medium-font-size\"><a href=\"https:\/\/abcnews.go.com\/GMA\/Wellness\/23andme-dna-data-security\/story?id=115818849\">abcnews<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>The&nbsp;financial struggles&nbsp;of genetic testing and ancestry company&nbsp;23andMe&nbsp;are raising questions about the security of customers&#8217;&nbsp;DNA&nbsp;and other data. The company&nbsp;announced&nbsp;Monday that it would lay off around 40% of its workforce &#8212; about 200 employees &#8212; and close its drug development arm in an attempt to cut costs. On Tuesday, 23andMe&nbsp;released&nbsp;its latest earnings report, showing revenue dipped 12% [&hellip;]<\/p>\n","protected":false},"author":5,"featured_media":34711,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5784],"tags":[31210,31209],"class_list":["post-34710","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-health","tag-23andme","tag-genetic-data"],"_links":{"self":[{"href":"https:\/\/ustower.net\/index.php?rest_route=\/wp\/v2\/posts\/34710","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ustower.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/ustower.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/ustower.net\/index.php?rest_route=\/wp\/v2\/users\/5"}],"replies":[{"embeddable":true,"href":"https:\/\/ustower.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=34710"}],"version-history":[{"count":1,"href":"https:\/\/ustower.net\/index.php?rest_route=\/wp\/v2\/posts\/34710\/revisions"}],"predecessor-version":[{"id":34712,"href":"https:\/\/ustower.net\/index.php?rest_route=\/wp\/v2\/posts\/34710\/revisions\/34712"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/ustower.net\/index.php?rest_route=\/wp\/v2\/media\/34711"}],"wp:attachment":[{"href":"https:\/\/ustower.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=34710"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/ustower.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=34710"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/ustower.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=34710"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}